Hello and welcome to Spoonfuls Of Glitter
January 14, 2017
Hello and welcome to Spoonfuls of Glitter!
My name is Jen and I’m here to share the things that makes me smile, keep me going through the hard and painful times and tips and tricks for keeping you looking and feeling utterly fabulous!
I am a Chronic Illness Awareness Advocate and fellow Spoonie. I have also worked in the beauty industry for 18 years spending my 20’s and some of my 30’s making people even more beautiful and getting to play with some of the best skin care and makeup products out there.
I will give a brief run through of my Spoonie journey but if you would like to know more, there is lots of info on my Facebook page.
I was once very active, enjoyed the gym, going for a run, horse riding, swimming, Zumba and dancing the night or weekend away!
I was pretty active right up till my second pregnancy.
I had a hard 1st pregnancy in 2007 and had lots of joint problems that would come and go but in 2012 my life changed forever!
My pelvis was so painful during the second pregnancy and I ended up spending the last three months of the pregnancy in bed on the ward. A traumatic delivery left me with Post Traumatic Stress Disorder (PTSD) and the stress of this, started to attack my immune system. I started swelling up all over, had pain everywhere and my pelvis never recovered.
I spent the following two years in and out of hospital at first being diagnosed with Fibromyalgia and Chronic Fatigue Syndrome. This then led to second opinions about my pelvis and in 2015 it was discovered that my pelvis was crumbling away over the pubic bone area. This is a condition called Osteitis Pubis and it had gone undetected until it was too late, they’d been calling it Symphasis Pubic Dysfunction (SPD) up till this point. By the time they realised, I had no other choice other than to go through major surgery to remove the damaged bone at the front, fill the gap with a bone graft and then metal plates and bolts across the pubic bone to hold it all together, yes ouch, MEGA ouch!
The stress of the surgery impacted on my immune system further and they decided I didn’t have Fibromyalgia, I had some sort of Arthritis going on. My hands were swelling and hurting, my knees, my ankles and I permanently felt like I had the flu.
I also kept getting bladder infections and no matter how many antibiotics I took or how long I took them for, it kept coming back.
Fast forward to 2017 and I’ve had assessments with top Rheumatologists, Rare Disorder Specialists, Geneticists, Bladder Specialists and Orthopaedics. I’ve had bladder biopsies, CAT scans and MRI’s and every test under the sun.
To date I have now been diagnosed with the following…..Ehlers Danlos Syndrome, Histamine Intolerance, Arthritis, Interstitial Cystitis, Follicular Cystitis, Chronic Fatigue, PTSD and impingements in both hips that will need further surgery.
People often ask me how I manage to keep smiling so much.
The answer is simple for me, pretend it’s not happening and whenever or wherever possible, treat yourself to something gorgeous!
I am more than a little addicted to online shopping, it’s amazing how much a little parcel through your door puts a spring in your step!
Life is way too short to save things for best!
If you have got something hanging in your wardrobe that makes you feel amazing, shoes sat in a shoe box that make you feel glamorous or a beautiful handbag tucked away that makes you feel sophisticated, wear them/use them! Even if you are only off to a hospital appointment, wear them! You would be surprised how uplifting feeling fabulous is! If you are a wheelchair user, why shouldn’t you wear your killer heels and sit pretty, you aren’t invisible and it’s time to shine and be noticed!
For me, putting my makeup on, wearing my faux fur coat, using my nice bags, shoes and perfume makes me feel like I am the winner. It makes me feel like I am powerful and strong, not the victim people expect me to be. It helps me hold my own in those doctors rooms where you have to fight to be heard when you suffer with chronic illness, it makes me pretend I don’t take any shit! Of course once home, I’ll cry, scream and shout but the outside world will never see me crumble!
I hope you can relate to my blogs and I hope you enjoy them. I hope they leave you inspired, uplifted, motivated and feeling less alone after reading them.
I am not a cool young hipster and I am not utterly gorgeous and completely flawless. I am not a size 0 skinny Minnie, in fact, thanks to this random swelling from time to time, my dress size goes up and down like a yoyo! I could understand if I ate loads but most the time I’m off my food!
I’m just a Spoonie Mum of two, in my 30’s,the wrong side of 30 now, another fact I like to pretend isn’t happening!! I’m just a normal lady trying to make the most of what I’ve got, the best of what I’ve got and sharing all things utterly fabulous with you all!
Thank you so much for popping by,